tag:blogger.com,1999:blog-5895440453335552117.post1464390700192225320..comments2024-03-28T15:12:21.172-04:00Comments on calvin's story: be aware and share (video)Christy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-5895440453335552117.post-29142110203175941582013-03-28T14:14:59.938-04:002013-03-28T14:14:59.938-04:00dear sylvia, very sorry to hear about so many seiz...dear sylvia, very sorry to hear about so many seizures but great that the onfi has stopped them! one of calvin's meds is onfi though he still has seizures. very stubborn. thank you for reaching out.<br />Christy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-34476578964236205152013-03-27T15:12:25.805-04:002013-03-27T15:12:25.805-04:00My daughter's seizures are very similar to Cal...My daughter's seizures are very similar to Calvin's. She was having up to 50 per day for the past 12 years since being diagnosed with brain cancer in 2000. Last October we added Onfi to her medications and she has not had a seizure since! We are grateful for every seizure free moment, because as you mentioned-a pill is not a cure. Statistically she will most likely not remain without seizures forever. It is sobering. My heart and prayers go out to you and sweet little Calvin.Sylviahttp://faithfulmomof9.comnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-75292710466270635992013-03-27T09:48:56.997-04:002013-03-27T09:48:56.997-04:00Having had seizures for 20 years, it still makes m...Having had seizures for 20 years, it still makes my heart tumble to see someone else's seizures. Empathy is a beautiful feeling.tropicalpenguin18https://www.blogger.com/profile/11800176995322015524noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-85828518440848767452013-03-27T08:50:55.815-04:002013-03-27T08:50:55.815-04:00i suppose the odds are 1 in 100.i suppose the odds are 1 in 100.Christy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-81159574489502575202013-03-27T01:59:40.622-04:002013-03-27T01:59:40.622-04:00Sophie's seizures look nearly identical -- at ...Sophie's seizures look nearly identical -- at least once and sometimes up to five times a day. While I haven't grown used to them, I can watch Calvin without panic. It's your voice that kills me.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-13869721917643616492013-03-26T19:39:39.216-04:002013-03-26T19:39:39.216-04:00Now what are the odds of you sitting next to someo...Now what are the odds of you sitting next to someone with Epilepsy? What a strange but good connection.<br /><br />This is a hard video to watch, even having seen seizures myself but I agree that it's helpful to see that seizures look different than what we may think.<br /><br />Anonymousnoreply@blogger.com