tag:blogger.com,1999:blog-5895440453335552117.post3285547577968896425..comments2024-03-28T15:12:21.172-04:00Comments on calvin's story: parent perspectivesChristy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5895440453335552117.post-48179341162356391922013-01-08T08:53:14.060-05:002013-01-08T08:53:14.060-05:00yes, beautiful, horrible and totally strange. i co...yes, beautiful, horrible and totally strange. i couldn't agree more, eee. i find myself repeating your words often. xoChristy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-20150532542079765092013-01-08T06:13:52.338-05:002013-01-08T06:13:52.338-05:00These are all difficult stories. I share in them w...These are all difficult stories. I share in them with my child. But, I was wondering do you have any story thet had a turn for the better? That would be good stumulus for us all!Mateonoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-84840538434319012802013-01-07T23:40:23.343-05:002013-01-07T23:40:23.343-05:00I walked down a crowded city street one morning wi...I walked down a crowded city street one morning with my friend Jody. We pushed our babies in their strollers,both diagnosed with infantile spasms and cerebral palsy. Jody is an actor and she exclaimed, "Our lives are ruined!" in a dramatic voice. For a moment, I shrunk at it, and then I laughed and agreed. Our lives were ruined, but I wouldn't know for a long time afterward that we had new lives, lives that were at once beautiful and totally strange.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-51678330738388238972013-01-07T14:04:36.623-05:002013-01-07T14:04:36.623-05:00Oh yes, hearing other parents' struggle really...Oh yes, hearing other parents' struggle really does make me feel less alone. These are heartbreaking and it still feels a bit bizarre that I'm in seizure world with my child too. Thank for sharing these.Anonymousnoreply@blogger.com