SUMMARY OF THE STATE OF EPILEPSY RESEARCH
EPILEPSY RESEARCH IS IN NEED OF MORE FUNDING
$140–160 million in epilepsy research, but per patient contributes less to epilepsy than it does to other major neurological disorders. Finally, at less than $10 million, non-profit foundations contribute less than $4 per patient to epilepsy research. Parkinson’s, by contrast, receives $40–50 per patient from nonprofits. All told, epilepsy receives less total funding per patient than Alzheimer’s, Parkinson’s, and autism (Exhibit 1). Per researcher, funding for epilepsy lags average funding for all diseases by nearly 50%. It is hard to imagine finding a cure (or cures) for epilepsy will be feasible without a significant increase in funding across all three sources. In particular, much can be done to drive an increase in contributions to epilepsy organizations for research, where the gap is most significant relative to other neurological disorders.
RESEARCH ON UNDERLYING MECHANISMS IS NEEDED
GREATER SCIENTIFIC COLLABORATION IS REQUIRED
Often the greatest insights are made when researchers from different institutions or disciplines work together. Research funders can drive collaboration through grant criteria that require active engagement from multiple institutions or disciplines, and by creating forums for sharing positive and negative data, specimen repositories, and research discussion roundtables.
It is the recognition of both the successes and shortcomings described in this report that will allow us as a community to accelerate progress toward a cure.
See more at: CURE: 2010 State of Epilepsy Report