tag:blogger.com,1999:blog-5895440453335552117.post5761191509816741671..comments2024-03-23T15:17:15.865-04:00Comments on calvin's story: benzo withdrawal syndromeChristy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5895440453335552117.post-40116747771709610982016-11-11T14:50:50.857-05:002016-11-11T14:50:50.857-05:00Christy. So sorry to read this. Your poor son. Im ...Christy. So sorry to read this. Your poor son. Im still healing 2 and a half plus years later. Put on for ptsd after leaving a DV relationship. Docs kept me on very high doses for 11 years. Took myself off over a 4 month period. Still not back to life as I knew it. But am hopeful to have survived and even worse nightmare than the domestic violence. Hope that Calvin is doing better. I know it's a very long process starahttps://www.blogger.com/profile/02861664048220016307noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-24895978143597333552015-12-02T09:33:56.772-05:002015-12-02T09:33:56.772-05:00dear unknown, i started researching cannabis stric...dear unknown, i started researching cannabis strictly to help stop calvin's seizures, not so much to help the withdrawal. in fact, many people recommend getting to seizure freedom by using cannabis BEFORE withdrawing from pharmaceutical drugs. but i had heard that cannabis, namely its constituent cannabidiol, can raise clobazam levels in the blood, so i made the decision to wean the benzo at the same time. for a while now, however, i have tried to stay the cannabis dose while i continue the slow wean of the clobazam. this way i limit the variables so i have a better idea what is doing what. calvin's pediatrician and neurologist are supportive, but i am pretty much doing this on my own since they don't know much about it. i am feeling my way through it with the help of other parents and a little advise from a local DO who prescribes cannabis for a myriad of conditions. i hope this helps.Christy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-29743699434142374082015-12-02T03:47:06.632-05:002015-12-02T03:47:06.632-05:00How did you know to try cannibis? Did you find a ...How did you know to try cannibis? Did you find a dr who could help? nightmare withdrawalhttps://www.blogger.com/profile/09730932046126523362noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-24929264135548534882015-08-12T02:08:20.744-04:002015-08-12T02:08:20.744-04:00Two years to wean for me, still have post-withdraw...Two years to wean for me, still have post-withdrawal syndrome at a few months shy of three years. If you include the initial attempt to wean from Klonopin, which had to be done by moving to diazepam for a couple of years, it was more like a six-year process. This is not a drug that should be considered unless there is absolutely no alternative, and treatment is a necessity (in other words, anxiety, PTSD, etc. are probably not good enough reasons, not even Complex PTSD). Very sad that your child had to suffer through this. I managed to have almost all of the symptoms on the list, after a decade on relatively high doses. It really is that bad. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-52782187103112721602015-04-05T23:44:01.215-04:002015-04-05T23:44:01.215-04:00It's interesting that the labels you applied t...It's interesting that the labels you applied to this post do not include anger. I suppose if you let it in, it might consume you, and then where would Calvin be. But to think that the doctors didn't tell you this, that they are so quick to use these drugs...It is infuriating.<br /><br />Julia RRAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-21282857197649749612015-04-04T18:34:26.444-04:002015-04-04T18:34:26.444-04:00I remember first hearing about benzo withdrawal wi...I remember first hearing about benzo withdrawal with regards to elderly people who had been given the drug. It's not a good family of drugs in general. I'm sorry your son has to go through this. My life so farhttps://www.blogger.com/profile/16721270441968035994noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-7585942240715447882015-04-04T17:54:58.744-04:002015-04-04T17:54:58.744-04:00omg....No one told you this??? I become more and ...omg....No one told you this??? I become more and more convinced that parents (and patients in general) need a well-informed advocate, and probably a short period of pre-decision time any time the treatment suggested has significant risks. In general, that should prevent some of the untoward results that come with anxiety-driven hasty decisions.<br /><br />We are learning a lot from reading your blog.<br />Carolhttp://gmail.comnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-62561901721271269162015-04-04T17:40:54.362-04:002015-04-04T17:40:54.362-04:00It makes me want to kill myself, to tell you the t...It makes me want to kill myself, to tell you the truth. I posted a bit of this some months back and the reminder doesn't soften things. I, too, though, am grateful for the THCa and the CBD -- Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.com