tag:blogger.com,1999:blog-5895440453335552117.post6100756012718950135..comments2024-03-28T15:12:21.172-04:00Comments on calvin's story: toxic heartacheChristy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-5895440453335552117.post-89525808062950660982017-07-24T17:34:27.643-04:002017-07-24T17:34:27.643-04:00thank you!thank you!Christy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-511035327458111142017-07-23T19:54:40.521-04:002017-07-23T19:54:40.521-04:00Do you know about the Facebook group called Healin...Do you know about the Facebook group called Healing B6 Toxicity? They may be able to help.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-861391004330445282017-07-19T17:48:59.864-04:002017-07-19T17:48:59.864-04:00they are regularly prescribed to control seizures,...they are regularly prescribed to control seizures, both as maintenance drugs and for emergency drugs. sickening.Christy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-55569454840469636952017-07-19T17:33:47.104-04:002017-07-19T17:33:47.104-04:00Why was a child on benzodiazepines?? What is happe...Why was a child on benzodiazepines?? What is happening to this world Anonymoushttps://www.blogger.com/profile/17807269186536411056noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-14063835424411133242017-07-11T08:34:52.711-04:002017-07-11T08:34:52.711-04:00Please don't beat yourself up about this! You...Please don't beat yourself up about this! You have done and continue to do all in Calvin's best interests. B6 is considered to be one of the "water soluble" vitamins so why would it occur to you that it could be overdosed? His doctors knew you were providing it as a supplement so why didn't any of them think to check for toxicity? My best to you and your sweet boy. EVERY child should be so lucky to have parents such as you and your husband! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-57492154609934400752017-07-10T16:19:58.159-04:002017-07-10T16:19:58.159-04:00Christy,
You are navigating what can be a cruel an...Christy,<br />You are navigating what can be a cruel and inexplicable world. You are doing all you can with a fierce and tender love for Calvin - and helping so many others along the way. Sending love and understanding, mother to mother, friend to friend.<br />Love,<br />Jessicajessica gandolfhttps://www.blogger.com/profile/06744400432872703534noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-39338302479059553942017-07-10T14:25:14.629-04:002017-07-10T14:25:14.629-04:00Dearest Christy, You are out there having to navi...Dearest Christy, You are out there having to navigate without a chart, because the chart hasn't been written. You are writing it, and others will benefit from your generosity and honesty. Much love, AnnAnn K.https://www.blogger.com/profile/05148148411708040614noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-8105552692225613672017-07-10T09:50:41.603-04:002017-07-10T09:50:41.603-04:00From the bottom of my heart, thank you for sharing...From the bottom of my heart, thank you for sharing your story.<br />My 3 yr old was on 1000mg of Keppra Daily and we were giving 50mg of B6. He came off Keppra and I stopped B6, and since he has been doing SO much better... I thought it was the Keppra, but I am now wondering if the B6 was hurting himMeghanhttps://www.blogger.com/profile/04644559400853273840noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-90115217560994822172017-07-10T07:00:03.209-04:002017-07-10T07:00:03.209-04:00Christy- you are doing all you can to make this a ...Christy- you are doing all you can to make this a better world for Calvin. You pour your love into everything. You are so dedicated and persistent. I am sure Calvin loves you for all you do. I miss you, old friend. Xx Shell Anonymoushttps://www.blogger.com/profile/11941452122814548038noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-7776027404460548422017-07-09T22:46:21.633-04:002017-07-09T22:46:21.633-04:00You were doing your best. I hope Calvin is feelin...You were doing your best. I hope Calvin is feeling better soon, and you as well.My life so farhttps://www.blogger.com/profile/16721270441968035994noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-47869144546222446832017-07-09T22:16:17.052-04:002017-07-09T22:16:17.052-04:00Oh Christy -- don't be too hard on yourself. B...Oh Christy -- don't be too hard on yourself. B-6 deficiency can also cause seizures. You don't know if his level has been elevated for years, and you don't know whether his symptoms are due to whatever else. It's all so difficult, such a clusterfuck. And scary. I really don't know how we do this.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-52646248227991919412017-07-09T21:32:40.715-04:002017-07-09T21:32:40.715-04:00love. love. love to you all.love. love. love to you all.Christy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-85339368986239158632017-07-09T21:28:44.096-04:002017-07-09T21:28:44.096-04:00Oh, my dear. As parents, we are constantly having ...Oh, my dear. As parents, we are constantly having to second guess our best efforts to help our children, without a road map, without a compass, without... so much we need and deserve. And sometimes it sucks. Love and honor to you for your bravery in the face of all of this hard, hard stuff. I would wish for a parent like you if I were Calvin. I'd be blessed. B6 and all. Anonymoushttps://www.blogger.com/profile/10440535758321481439noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-54548808093543558712017-07-09T17:57:41.599-04:002017-07-09T17:57:41.599-04:00I JUST had a similar conversation with a dear frie...I JUST had a similar conversation with a dear friend and fierce mother. We've all been here. We have. And we cried too. All the pieces, choices and feelings can come together in heartbreaking/head exploding ways . . . How are we to know anything? It's all such an angry mystery. I honor you for fighting with it all. It's just bullshit. I'm here in it with you too.Allison Ray Benavideshttps://www.blogger.com/profile/10513628963796782490noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-39401393235439333552017-07-09T15:25:51.977-04:002017-07-09T15:25:51.977-04:00Christy, hang in there. I'm so sorry to read ...Christy, hang in there. I'm so sorry to read this post, but so happy that you chose to test the Vitamin B levels. I'll keep my fingers crossed that dropping the vitamin B helps quickly. Biological systems are resilient, and so are you and Calvin. He has you, the best possible person in his corner fighting for him every day! Hugs and love!!Hadleyhttps://www.blogger.com/profile/07541097780485888226noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-66293239331918943802017-07-09T14:30:32.539-04:002017-07-09T14:30:32.539-04:00Hugs to you and Calvin. What to do when medicine ...Hugs to you and Calvin. What to do when medicine has failed you? You try to find better. One of the things that is so upsetting is how little doctors know about drug interactions, not to mention supplements. They depend on pharmacy to keep them straight on prescription Meds. You go outside their circle of familiarity and you are in the wilderness. <br /><br />It's a sore spot to me how naturalists who have holistic supplements know even less about interactions. Even when the info is out there, not something Tory check. You throw cannabis into the mix and it's all up in the air. No clinical trials at all it can be another lifetime before they are done, and your need is now. You do the best you can. I'm sorry. Rebecca yourighttps://www.blogger.com/profile/00280799506632923546noreply@blogger.com