tag:blogger.com,1999:blog-5895440453335552117.post6342747848556989769..comments2024-03-28T15:12:21.172-04:00Comments on calvin's story: playful gamesChristy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5895440453335552117.post-89496209790149708572011-07-11T14:03:59.738-04:002011-07-11T14:03:59.738-04:00jakob,
thank you for your comment. i am glad you w...jakob,<br />thank you for your comment. i am glad you were able to have a healthy child. we were too nervous and busy to have another child, plus take attention away from calvin. both my husband and i were 40 when we had calvin so we were also risking having a child with down syndrome. you might be interested in my posts "healthy child" and "envy."<br />take care, christyChristy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-5804653804390089552011-07-11T13:09:52.309-04:002011-07-11T13:09:52.309-04:00Hello,
I just read your blog. I've got the l...Hello,<br /><br /> I just read your blog. I've got the link recommended by a group on facebook of the woman you met in ice cream shop. After I read it I could not help but write. I had no goal to write you other than if it's any consolation, you're not alone. My wife and I have a son with the same syndrome (MeCP2 Ducplication Syndrome), he is 9 years old and a very charming guy, also with some challenges around the move and on the whole moving of his lems. Seizures, he has had one about 2 months ago, so maybe we're now in the "later" stage now (A bit scary).<br /><br /> It was a pleasure reading your blog and I can 100% put myself in how you feel. To your statement about "only" having one child that carries a disease, it is something we tried for 5 years. We chose, in spite of all doctors' warnings to have a child again. We did not realize at the time what our first boy's diagnosis was, and that it was an inherited gene defect. We luckily got a great boy, now 4 years and no other "problems" than normal boys his age.<br /><br />/JakobAnonymousnoreply@blogger.com