tag:blogger.com,1999:blog-5895440453335552117.post7062348264344763412..comments2024-03-23T15:17:15.865-04:00Comments on calvin's story: idiot. savant.Christy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-5895440453335552117.post-77829062343470765282011-12-01T21:13:15.498-05:002011-12-01T21:13:15.498-05:00Christy, This is a particularly beautiful post.Christy, This is a particularly beautiful post.Lesleynoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-2216884064104828812011-11-23T15:02:11.764-05:002011-11-23T15:02:11.764-05:00dear shawna,
thank you so much for writing. please...dear shawna,<br />thank you so much for writing. please share calvin's story with the world. we must let people know how terrible epilepsy is and how neglected its research.<br />keep reading! <br />xo, christyChristy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-28120764716729617212011-11-23T15:00:25.066-05:002011-11-23T15:00:25.066-05:00Thank you for sharing your story so openly. As a f...Thank you for sharing your story so openly. As a fellow parent of a child with epilepsy, I am grateful to have found your blog. Blessings to you and Calvin on Thanksgiving, for despite the challenges kids with epilepsy face, they are indeed amazing blessings as you've so poignantly said.<br /><br />ShawnaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-6761483225551783312011-11-23T14:59:47.923-05:002011-11-23T14:59:47.923-05:00dear federica,
i remember you. you are very kind. ...dear federica,<br />i remember you. you are very kind. i am glad my writing moves you. please share with the world. some day i hope to publish a book, though for now this is the best venue to reach people and tell them about epilepsy.<br />thank you for writing. sometimes i am not sure what people think about what i write and so when people like you reach out it makes a big difference to me!<br />xo, christyChristy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-69372957209228284892011-11-23T14:43:15.875-05:002011-11-23T14:43:15.875-05:00Dear Christy,
I wrote you a couple of weeks ago bu...Dear Christy,<br />I wrote you a couple of weeks ago but didn't introduce myself. I came to your blog trough Emily Rapp's NYT article.<br />Your posts move me. Keep on writing, I'll keep on reading.<br />A big hug to you and Calvin from Italy.<br />ciao<br />FedericaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-14185021660937971612011-11-23T14:00:44.627-05:002011-11-23T14:00:44.627-05:00dear anonymous,
calvin tried the ketogenic diet wi...dear anonymous,<br />calvin tried the ketogenic diet without any success for over two years. his seizures remained but he turned into a zombie as it seemed to make him metabolize his seizure meds differently. thank you for sending this on in any case, and for your kind thoughts. keep reading and share calvin's story with the world. <br />take care, christyChristy Shakehttps://www.blogger.com/profile/00106761191160700997noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-48756063231555878352011-11-23T13:27:26.299-05:002011-11-23T13:27:26.299-05:00Thank you for sharing your son's (and your) st...Thank you for sharing your son's (and your) story: Calvin's strength and resilience in the face of such terrible difficulties are amazing. You may have already seen this article, or heard about this treatment, but I felt compelled to share with you this New York Times story about another little boy with epilepsy: http://www.nytimes.com/2010/11/21/magazine/21Epilepsy-t.html?ref=magazine This treatment brought one boy to that prayed-for place of "healthy." I can only pray that you find the right treatment for Calvin's seizures, too -- maybe this might help. Many thoughts of strength to you, your boy, and your family.Anonymousnoreply@blogger.com