tag:blogger.com,1999:blog-5895440453335552117.post7399160314048329761..comments2024-03-23T15:17:15.865-04:00Comments on calvin's story: feeling defeatedChristy Shakehttp://www.blogger.com/profile/00106761191160700997noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5895440453335552117.post-58647938452947525932017-11-11T20:21:20.595-05:002017-11-11T20:21:20.595-05:00Btw don't chase the CBD or THCA with water. A ...Btw don't chase the CBD or THCA with water. A lot of successful absorption comes through mouth and mucous membranes Zeesalhttps://www.blogger.com/profile/09238731749231269312noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-12385510467997598242017-11-11T20:15:07.389-05:002017-11-11T20:15:07.389-05:00Reading this from my sofa where I am both monitori...Reading this from my sofa where I am both monitoring my son watch the Wiz and wondering how you- how we - do it too. My son first began seizing at age 3. His beautiful life as well as mine, shattered that morning with a severe tongue biting horrible grand mal. The days that followed of missed lumbar punctures, fruitless MRIs and eeg wires glued to his head. Then the years of watching helplessly as multiple other types of seizures, sometimes hundreds per day fried his brain into the sometimes here sometimes gone state we live in now. Despite being a critical care nurse and being able to slip benzos directly into his veins if necessary and to navigate neurology like an old shoe, it is no easier to watch. Four other children do without much of my attention as do my husband and my own life. I don't know if it helps you, my sister in this, but you are not alone. I am no more capable of giving up on him than you are with yours. I don't even threaten it in my own mind very often now, but rather obsess over what happens to him when I am no longer here to help him breathe and tweak his medications as we all must do because of the hateful tolerance. The epileptic entity that is the enemy developed almost cunning ability to adapts and then not respond to our interventions. I'd wish you strength and love but you have that inside. We get that from our maternal tiger. Here's to yours! I just wish had the tools to cure them and to stop this hell on earth. Zeesalhttps://www.blogger.com/profile/09238731749231269312noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-80985897635911258002017-11-08T19:30:03.828-05:002017-11-08T19:30:03.828-05:00I'm sorry. Sorry that it sucks. Sorry that C...I'm sorry. Sorry that it sucks. Sorry that Calvin has to suffer like this. Sorry that you have to take care of him. It's beyond hard.My life so farhttps://www.blogger.com/profile/16721270441968035994noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-46239088145576445612017-11-08T10:32:42.089-05:002017-11-08T10:32:42.089-05:00Christy, this is heartbreaking, utterly so. Your s...Christy, this is heartbreaking, utterly so. Your story of such unrelenting demands to endure and love and care for Calvin, while managing a storm of conflicting emotions overwhelms me. I have no words adequate to what you must be going through when Michael is away, and even when you both are there, when Calvin spirals into a series of seizures. But YOU have the words. This particular essay powerfully laid down your burden with just the right mix of simple, emotionally fraught words and structure—I'm thinking particularly of the next to the final paragraph. You've given me something in your struggle to provide for Calvin. It's your gift of grace to me, like each sunrise morning is a gift to me at age 79. Viewpointhttps://www.blogger.com/profile/15073420539133786234noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-56404602571406686762017-11-07T20:31:01.161-05:002017-11-07T20:31:01.161-05:00Joining Elizabeth in happy Fucking National Caregi...Joining Elizabeth in happy Fucking National Caregivers Month wishes, not that I knew it was that month, nor do I have any idea after three decades how we keep doing it. But you write it well. <br /><br />Ahttps://www.blogger.com/profile/06318174928862120631noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-22855256275417073582017-11-07T17:27:53.807-05:002017-11-07T17:27:53.807-05:00what can i do to help, Christy?
what can i do to help, Christy?<br />sharhttps://www.blogger.com/profile/11453732653500135637noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-30861787321308647082017-11-07T16:48:24.920-05:002017-11-07T16:48:24.920-05:00You'll keep doing it because that's what w...You'll keep doing it because that's what we do. I'm loving on you from afar. We'll keep doing, even though it sucks. We might have lost our religion, but grace exists. It does and it descends just when we can't take it one more second. Happy Fucking National Family Caregivers Month, Christy. I love you so much.Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-26630270748056606572017-11-07T14:43:00.119-05:002017-11-07T14:43:00.119-05:00The lose of two lives. Why? Why did it have to b...The lose of two lives. Why? Why did it have to be this way for us?Andiehttps://www.blogger.com/profile/16027163638314511943noreply@blogger.comtag:blogger.com,1999:blog-5895440453335552117.post-72671988213474065712017-11-07T14:41:36.808-05:002017-11-07T14:41:36.808-05:00The stream of consciousness matches my own silentl...The stream of consciousness matches my own silently spoken in my head. Fourteen years. Andiehttps://www.blogger.com/profile/16027163638314511943noreply@blogger.com