Awake since one-fifteen, again reflecting on the state of things. Worrying about my restless son. Thinking about the racial strife, the righteous protests, the police.
An hour later the seizure came, my son shackled in its steely grip, at first unable to breathe. His heart beats wildly. I think about that handcuffed Black man dying, his neck under that White cop's knee.
It's day thirteen—a decent span without any fits since having increased my son's new medication: pharmaceutical CBD.
Things around here are getting green. Rhododendrons are blooming while wildlife encroaches—turkeys, foxes, raccoons, squirrels, chimpmonks—in the relative absence of humans on campus and cars zooming down the streets.
The status quo is unsustainable—in terms of seizures, racism, this unhinged administration, and policing. People previously silent are speaking. America is beginning to listen. Seizures seem to be abating. Revolutions of all kinds are within our reach.
An hour later the seizure came, my son shackled in its steely grip, at first unable to breathe. His heart beats wildly. I think about that handcuffed Black man dying, his neck under that White cop's knee.
It's day thirteen—a decent span without any fits since having increased my son's new medication: pharmaceutical CBD.
Things around here are getting green. Rhododendrons are blooming while wildlife encroaches—turkeys, foxes, raccoons, squirrels, chimpmonks—in the relative absence of humans on campus and cars zooming down the streets.
The status quo is unsustainable—in terms of seizures, racism, this unhinged administration, and policing. People previously silent are speaking. America is beginning to listen. Seizures seem to be abating. Revolutions of all kinds are within our reach.
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| Photo by Michael Kolster |
It's good to hear that Calvin is responding well to Epidiolex. I had forgotten that you were using it! Have you ever read about or heard of using the diuretic Lasix? My neurologist has suggested it, and I'm just loathe to do it.
ReplyDeletethanks, though six focal seizures yesterday. sigh. sleeping a lot the past few days, though that is not too unusual in the days after seizures. i don't remember hearing aout lasix. will look into it. how is sophie? how are you? xoxo
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