running for it


it's half past ten. just trying to get some sleep. there's a dense lump of tension, like a fist, lodged in my solar plexus. it feels electric, like it's vibrating through my entire being. its source is a mix of exasperation, helplessness and dread. sadly, it's all about calvin, who is out of sorts in the wake of two epileptic fits. he keeps banging the wall behind his bed. all i want to do is make a run for it.

calvin has had eight grand mals in thirty days. that translates into about half the month spent sleeping on me and the couch. i wonder what else i can do about his epilepsy. so exhausting living with it. today i switched his cannabis oil from hybrid to indica, hoping it might offer him some respite. he's pretty spacey, but that's typical the day after a tonic-clonic. my next move is to reduce his keppra. my gut—and a calendar marked up with orange highlighter and black sharpie indicating seizures—tells me the keppra isn't helping.

this tension i feel is cumulative. seventeen-and-a-half years of it. i often wonder what havoc it might be wreaking inside me. it's why i sometimes feel the need to scream. have to let it out so it won't devour me. or seat itself as a cancer in my organs, bones or blood.

in a move to ease my angst (and get in better shape) i started running. got new shoes. ran three days last week. took a longish, back-roads bike ride. the accomplishments were nothing to speak of. pretty meager efforts, really. still, i'm hoping they will stick.

i wonder if running might serve as some escape—from a stressful life with a messed-up kid. from being pent up and stuck. from the gnawing sense of dread.

perhaps running makes me feel more alive—my limbs and lungs pumped up with blood and breath.

or could it be i'm chasing something? a different vista? an extended moment all to myself? the dream of better days to come? some serendipitous adventure? a challenge other than handling my son's severe and complex conditions?

after today's modest jog on the trails around the soggy fields, the fist inside my chest had dissolved. i plan to run again tomorrow. with a bit of luck, i'll see some sights, and chase away some troubles, angst and sorrows.

1 comment:

  1. Keep running little sis! and hop in the pool for a few laps also. Wish Calvin was doing better and wish you were not so stressed. Love to you all.