friday first day

I woke up the other day, turned 47 and started this blog. I am not completely sure what I am doing or how to do it. All i know is that I have to do it.

For years I have been racking my brain for ways that I can make a difference in the world on behalf of epilepsy awareness, funding, treatment and the quest for a cure. I guess the best way is to start with baby steps. Here is where I can take a lesson from my six year old son Calvin, to whom I dedicate this journal.  He is my hero, my inspiration and the one who makes me want to be a better person every day.

Calvin has had intractable epilepsy since he was two years old. Since then he has suffered hundreds of seizures of all types, including one forty-five minute convulsive seizure when he did not respond to a bevy of emergency medication; we were left helpless at his side, terrified for his life and powerless to do anything to help him.

This blog is meant to demystify and destigmatize epilepsy. It is meant to enlighten the public as to the nature and scope of the disorder. It is meant to offer support to other families who are touched by epilepsy.

I hope I can make a difference.


  1. I salute you...I thank you. From a mother who has gone through much of what you experience daily, I can truly understand. It is exhausting. Calvin is blessed to have you as his mother. You WILL make a difference...thank you!

    Take care,

  2. Indeed you are making a difference!

  3. Blessings to you and Calvin. If ever you wonder if you are in fact making a difference while sharing--you are for one previously in control super mom that life flipped upside down on this year and now---I can't seem to breathe much less form a decision because I can't help my child. Thanks for giving us a clue and some talk in English terms!