A mother's journey through the anguish, grief, joy and triumph of raising a chronically ill, disabled, extraordinary child who shapes her view of the world.
Sophie has "graduated" to various colored strings of beads and plastic fruits.Oy.
You are an amazing mother, I hope to be half as positive/courageous as you are when my son is 9. My son was diagnosed with hypoxic ischemic encephalopathy at birth & with epilepsy at 1. I can relate to you in so many ways, unlike most mothers my age (twenty one).I enjoy reading your blog, thanks for sharing :)
dear amanda,thank you for reaching out. i hope for you to have courage as well. have you read my post "bird by bird?" i am sorry to hear about your son but i am glad that you find solace (i hope) in my blog. it helps to know you are not alone.xo,christy