A mother's journey through the anguish, grief, joy and triumph of raising a chronically ill, disabled, extraordinary child, and how he helps shape her views of the world.
Sophie has "graduated" to various colored strings of beads and plastic fruits.Oy.
You are an amazing mother, I hope to be half as positive/courageous as you are when my son is 9. My son was diagnosed with hypoxic ischemic encephalopathy at birth & with epilepsy at 1. I can relate to you in so many ways, unlike most mothers my age (twenty one).I enjoy reading your blog, thanks for sharing :)
dear amanda,thank you for reaching out. i hope for you to have courage as well. have you read my post "bird by bird?" i am sorry to hear about your son but i am glad that you find solace (i hope) in my blog. it helps to know you are not alone.xo,christy