Like all seizure medicines Clobazam is a cognitive depressant, and while this particular medicine has impacted Calvin’s seizures it can adversely affect language, learning, concentration and memory. It can cause poor coordination, sleep apnea, restlessness and other long-term cognitive and behavioral trouble including addiction. So while the drug might reduce his seizures it likely also robs him further of chances for development. As it is, Calvin’s development has very nearly come to a plateau since he was diagnosed with epilepsy over four years ago.
After much deliberation we opted to increase Calvin’s medicine with the hope that his seizures will stop as a result. With any luck a reprieve will allow his brain to heal which in turn might help his development. Without a cure, though, our precious boy will likely need to remain on risky drug treatment and may never realize his full potential. What is cut-and-dried is that we need a cure. Without it we all lose.
|photo by Michael Kolster|