10.10.2012

days in the life

September 5, 2011
* good balance * suspicious. too good to be true?
* shit in bath AGAIN
becoming pattern

September 6th, 2011
* 2+ minute tonic-clonic seizure, slept 1 hour. later, slept another hour
did not want dinner but took pill’s like always

September 7, 2011
* BEST WALKING OF LIFE?!

September 20, 2011
day 6
* TONS OF HYSTERICAL LAUGHTER @ NOTHING
lots of head rubbing at school
lots of humming and fingering
* SEIZURE BREATH
* SUSPECT SEIZURE TONIGHT

September 21, 2011
* 11:30 am 2+ minute tonic-clonic seizure in jumper
SUPER LOOPY P.M. HYPER

September 5, 2011
* tight face in jumper. odd looking. irritable.
* 12:15 2+ minute tonic-clonic seizure @ school while eating lunch :(
slept 1  1/2 HOUR
not wanting to walk
crazy in bath screaming manic

October 19, 2011
* crying @ school took to doc
no ear infection 41 lbs.
increased am keppra 125 mg to 250 = 250 mg bid

October 23, 2011
day 18 — longest in 2 years
poor appetite persisting for several days
ate practically nothing

October 26, 2011
fell and hit head lightly on rock. cried some.

October 28, 2011
day 23
weird behavior @ breakfast. ODD VOCALIZATIONS NOT HUNGRY
* grinding teeth. head spinning. zombie eyes. head rubbing. slight seizure breath. happy. walking good. runny nose. looks tired
* 5:15 pm 3+ minute tonic-clonic seizure started in tub very cyanotic

November 6, 2011
walked GREAT @ BEACH probably 1/4 mile holding our hands
SUPER HAPPY DAY

November 18, 2011
not too interested in food
EAR INFECTION 40 lbs.
ate practically zero dinner
lost 1 pound in month
* started amoxicillin

November 30, 2011
HYPER YIKES!
but eating :)
fell asleep @ kidney sonogram
ate almost no dinner but liked hot dog and broccoli for few bites

photo by Michael Kolster

2 comments:

  1. Sometimes I look back at posts I wrote about Sophie's seizures four years ago, and things are much the same. That depresses me and lifts me up, simultaneously.

    ReplyDelete