these nine years (in no particular order)

loss

developmental delay

low muscle tone

neurologists

ventriculomegaly study

reglan

drooling

seizures
love

MRIs

trileptal

physical therapists

anger

nystagmus
appreciation
bruises

erythromycin
ear infections

pneumonia

breakdowns

sleep deprivation
choking

ear infections
visually evoked potentials

fatigue

bronchitis
adoration

hospitals

speech and language pathologists

pain

endocrinologist
despair

pharmacies

keppra 

outbursts
neuro-ophthalmologist

insomnia

pediatric intensive care unit

esotropia
lactulose

atavan

spit ups

kidney sonograms

teacher for the visually impaired

multiple 24 and 72 hour EEGs

nuclear medicine
hugs

depakote

slow gastric emptying

diastat

circumcision

therapy

febrile seizures

occupational therapists
gluten free casein free diet
thankfulness

gastroenterologists

lamictal

lung X-rays

cyanosis

urologists

general anesthesia
gratitude

arguments

zonegran
diapers

status epilepticus

antibiotics
yeast eradication
monotony

emergency rooms
screaming

nausea

clonazepan

blood draws
status epilepticus
sweetness

sleep study
disappointment
pharmacies
insurance nightmares
inertia
suppositories
pervasive developmental delay not otherwise specified
autism spectrum

anesthesia
affection
hiatal hernia
withdrawal seizures
ataxia
dizziness
missed opportunities
envy
suffering

nephrologist
colonoscopy prep for impaction
constant worry

neurontin

pediatrician

smiles

911

ataxia

pulmonologist
expectation
medically refractory epilepsy

intestinal X-rays

carnitor
happiness
forgiving
paperwork
research
tears
nightmares

ambulances

vitamin B6

grief
pills

phlebotomists

forty-five-minute seizure

saying goodbye

eye patch
emergency intubation
hope
20/1000 legally blind

epileptologists
missed milestones
capsules
tears

miralax

waiting rooms

frustration
headaches

potassium citrate
extreme parenting

worry

joy

melatonin
low glycemic index treatment
powders

frazzled nerves

eye surgery

zombie kid 

IVs

cod liver oil
impatience

ketogenic diet
humor
orthotics

irritability

hair loss (mine)

liver toxicity (calvin's)

walking harness

weight gain

hyperactivity
skill loss
liquids

weight loss

clobazam

broken tooth

keppra

hyperactivity
pride
apple of my eye

photo by Michael Kolster